November 19, 2014-15 months after RAI
I am still testing for thyroid levels about every 3 months or sooner. How am I feeling? Not great. The last levels showed my TSH were in the normal range, my Free T3 and Free T4 were in the very low numbers for the normal range. Everything I have read says that these levels should be higher. I believe that.
Last night I was cold and sweaty at the same time. I am very weak and have difficulty focusing on tasks. I write lists to remember what I want to do. I often have times where my arms and upper body feel like heavy electrical impulses running through them. This is very annoying. Also, the tinnitus (ringing in my ears) drives me nuts.
The doctor has switched me from 45 mcg of Armour to 50 mcg of Synthroid. I also take 5 mcg of liothyronine (cytomel).
My sleep patterns are crazy right now as well. I have difficulty going to sleep until 1AM and wake early around 4:30 or 5:30 in the morning. My muscles ache and I have to get up and move because they hurt. On a daily basis, I just push through the day. I try to relax but my mind and muscles do not cooperate. This is not a quick fix process and it is often depressing. I try to focus on little things like taking care of paperwork, cleaning out a drawer of spending time with a family member. Dreams of a career have mostly faded away. No retirement benefits for me.
If you are going through this process, you are not alone. I try to enjoy the flowers, the sun when it shines, the clouds blowing across the sky or whatever gives me the little joys in life.
I know if you are suffering from this type of illness, you are probably dealing with other health issues as well. I wish you the best and pray that you will have fun days with energy and no pain.