January 28, 2015-A year and a half after Radioactive Iodine for Multinodular Goiter Hyperthyroidism
Yes, it has been a long road and there is no end in sight for dealing with these thyroid hormone issues. In December, my doctor added more liothyronine to increase my Free T3 levels. So, now I was on 50mcg synthroid and 10mcg liothyronine, every day. I did feel better after a couple of weeks. Then I started having problems going to sleep and staying asleep. I was waking early in the morning, sometimes only getting 3 hours of sleep if I was lucky. My hair was falling out again and everyday I felt like I was coming down with the flu. I was getting waves of hot flashes on and off, even though, I could be cold at the same time. I just felt sick.
I had blood work taken the first of January. The TSH level was extremely low yet within normal range. This indicated I was hyperthyroid. My Free T3 levels were lower than they should be. That indicated I was hypothyroid. I was extremely frustrated and confused. My doctor said I looked more hyperthyroid so she has dropped the weekend dose to 50mcg synthroid and 5 mcg liothyronine on Saturday and Sunday and not changing the weekdays. It is so hard to believe these little tweaks will make much difference. Only time will tell, so I will wait until the next bloodwork and see if it makes a difference in a few weeks.
What is really difficult about all these ups and downs, besides feeling sick, is that it effects relationships with family and friends and the ability to have a career. I have to remind myself that I am blessed to have some good days and extremely fortunate to have caring family and friends. I know this illness is hard on them as well.