FIBROMYALGIA OR THYROID DISEASE…..focusing on hyperthyroidism and hypothyroidism

August 14, 2013-FIBROMYALGIA OR THYROID DISEASE…..focusing on hyperthyroidism and hypothyroidism

This is my second attempt at a Fibromyalgia/hyperthyroid blog. I gave up on my first blog because it was so frustrating writing down all the hundreds of possible causes and hundreds of trial treatments. Treatments included medication, diet, exercise, hormones, surgery and on and on. Over thirty years ago, I was diagnosed with Fibromyalgia. I have dealt with depression, muscle pain, insomnia, brain fog, stomach problem, sweating and/or lack of sweating, reactions to medications, thinning hair and just plain tiredness and grumpiness. As the years passed, my symptoms would change. Aches and pains would move and change. There was always something that hurt and cause me to complain. I had worked hard to finish my school work only to be unable to work due to exhaustion, pain and depression.

One of the treatment options that I pursued, repeatedly, was the possibility that something was wrong with my thyroid. Over the years, I made appointments with general doctors and endocrinologists to check this out. Lab work always seemed fine. One endocrinologist touched my throat, said it was fine then did not do any lab work just sent me home.

I kept looking at the symptoms for hypothyroid and hyperthyroid. They resembled most of my symptoms. I had gained about 30 pounds in the last 5 years. Knowing that being hypothyroid can cause weight gain, my family doctor allowed me to try armour thyroid used to treat hypothyroidism. I tried this a couple of times and did not think it helped much.

Finally, January 2013, I went to an endocrinologist for type II diabetes.  At that time, I told the doctor I felt like crap all the time and asked to be tested for Cushing’s disease. After being tested, she said I did not have Cushing’s but that my FSH levels were low indicating possible hyperthyroidism.

Hyperthyroidism! I could hardly believe this. I had ruled this out even though I had most of the symptoms. I ruled this diagnosis out because usually people with hyperthyroidism lose weight, sometimes a lot of weight. Even online, very few posts ever mention gaining weight from hyperthyroidism.

My endocrinologist tested me 3 times and hyperthyroidism kept showing up. She sent me down a path of tests and treatment that has gone on for 9 months now.

I will try to describe this journey to better health.

Summer 2013

After numerous tests including an Iodine scan, ultrasound and needle biopsy of my neck (not pleasant), I had a choice of Radioactive Iodine Treatment or surgery to remove my thyroid. The endocrinologist suggested Radioactive Iodine Treatment.

August 8, 2013

I had the treatment and was sent home to be in isolation for about 5-7 days.

More details to come later.

2 Responses to FIBROMYALGIA OR THYROID DISEASE…..focusing on hyperthyroidism and hypothyroidism

  1. Vicki says:

    I too have fibro..there is probably an thyroid/autoimmune issue too even though my thyroid tests are fine..I just found this website that seems to be very helpful! I am thinking of maybe ordering her two books to help in my search for answers!

  2. Don Downing says:

    Any diarrah. I have carcinoid cancer. Initially diagnosed as hyper thryoid . Medication and surgery for the carcinoid controlled the hyper thryoid. Diagnosed 8/2004 surgeries
    2004, 2005 and 2006 to controlled the disease. Not suppose to be inheritable. Our relation(s) goes back to daughter of Elizabeth Downing as she was my 5th great aunt and fourth great grandmother.

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